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Title: | Dignified palliative long-term care: An interpretive systemic framework of end-of-life integrated care pathway for terminally ill Chinese older adults | Author(s): | Kan, Wing Shan | Author(s): | Ho, A. H. Y. Luk, J. K. H. Chan, F. H. W. Ng, W. C. Kwok, C. K. K. Yuen, J. H. L. Tam, M. Y. J. Chan, C. L. W. |
Issue Date: | 2016 | Publisher: | Sage Publications | Journal: | American Journal of Hospice and Palliative Medicine | Volume: | 33 | Issue: | 5 | Start page: | 439 | End page: | 447 | Abstract: | Purpose: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents. Methods: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups. Results: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions). Conclusions: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity. |
URI: | https://repository.cihe.edu.hk/jspui/handle/cihe/931 | DOI: | 10.1177/1049909114565789 | CIHE Affiliated Publication: | No |
Appears in Collections: | SS Publication |
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